National Center for Newborn Screening System Excellence (NBS Excel)

The purpose of HRSA-23-077 NBS Excel is to fund one (1) organization to support state NBS programs and stakeholders on a nationwide basis by: 1) providing leadership, technical assistance (TA), and quality improvement expertise; 2) collecting data to identify barriers to achieving health equity and equitable access to NBS services for all infants and families; 3) enhancing state performance in NBS; and 4) providing subject matter expertise, TA and training, education, and other resources to youth and families in order to promote meaningful engagement of, active participation with, and leadership by families and/or individuals with heritable disorders at all levels of the newborn screening system.